TeamShaunyBoy
  • ABOUT
    • About ALS
  • MERCH
  • DONATE
  • BLOG
  • ADVOCATE
Picture

Quadriplegic

5/1/2023

0 Comments

 
Picture
It has been awhile since I’ve written about anything in my recent life experiences. First off, if you are reading this thank you . It is just a culmination of my experiences in the world since I received my terminal diagnosis.  I recently lost my arm and hand movements, I’ve earned the title quadriplegic.

I have been dreading this moment since my initial diagnosis.  Told myself I would not want to live like that. Can you imagine, paralyzed and unable to talk, hell no I’m not going through that shit. This was the polarizing moment where I had to make a decision.  And I didn’t make a decision, but I pointed mentally towards i will just let the disease take its course.

As time went on I began getting my affairs in order and working a lot to keep my mind busy.  I saw the movies Gleason and Augie, and I saw that it was not all doom and gloom, these guys are living. I said to myself I can do that, but then I learned that insurance doesn’t cover caregiving and I would be paying six figures a year to have the required care. Holy shit, just another huge burden.

​Today I am living with ALS. Yeah it’s fucking hard, I have some horrible experiences that pushed me to the edge. But here I am, and I am happy with my life.
0 Comments



Leave a Reply.

    Shaun Kalpakoff

    Archives

    November 2022
    July 2022
    March 2022
    February 2022
    December 2021
    November 2021
    October 2021
    July 2021
    June 2021
    May 2021
    April 2021

    Categories

    All

    RSS Feed

  • ABOUT
    • About ALS
  • MERCH
  • DONATE
  • BLOG
  • ADVOCATE